By taking part in the ABDR your health information will be used to identify quality of care issues relating to breast device surgery. The ABDR complies with State, Territory and Commonwealth privacy laws, with your data stored securely (bank level security) and accessed by trained, relevant ABDR personnel only.
We retain your contact details so that you can be contacted if required, such as for completion of the follow-up survey, to provide information at your request or in the unlikely case of device recall. The ABDR will not release your identifiable information to any person or organisation, other than to your surgeon and to state/national government databases containing details on operations performed in hospitals, in order to ensure that information on the registry is accurate and complete.
Analyses and public reports arising from the ABDR will contain no identifiable information about you.
Any access to information in the ABDR must adhere to strict protocols and procedures to ensure patient privacy and have ethics approval. Registry data will be made available to external researchers (upon ethics approval) but only after all identifiable patient information has been removed. Additionally, the ABDR Steering Committee will review all publications prior to submission to ensure that no individual or identifying information is published.